I had another doctor's appointment yesterday, which offered no concrete answers, to my continued chagrin. Here's what I wrote a friend about the experience:
"I got to see a rheumatologist yesterday, who once again gave me a shrug and a send-off. She mentioned that my symptoms were inconsistent with CFS, but she is also an arthritis specialist, so maybe she isn't the best person to know. She also said that it was a diagnosis of elimination, and she was also the first person to spontaneously mention CFS without my prompting, which may be helpful. In any case, I get to go see a muscle specialist when I get back from Canada, which may lead to a visit to Columbia University to put big needles in my muscles to see why I get more tired after exertion. So, long story short, back to the drawing board, and I'm still just in a place where I want a doctor to give me helpful advice of what I should be doing to build myself up again. Though I know that the answer is probably to just be resting infinitely, since I'm only feeling comfortable at rest. But since that's not the answer I want, I guess I'll be going to doctors until I get any answers at all, even if they're not the ones I want."
Although the doctor/diagnosis scene is still looking bleak, nearly everything else is going pretty great. I am so thankful for everyone I have in my life, especially those who are learning every day with me how to be patient, kind, and at a pace I can handle. I love you all so much.
In the meantime, I'll be visited by three friends starting tomorrow until I leave for Nova Scotia on Thursday, where I'll stay for about 3 weeks! I love being able to have these little adventures.
